in my past crusing thru autism posts on the bad site, once in a while somebody would post something talking about this and it was like reading my own experience in somebody else’s words.

for those of you who read the subject line and know exactly what I’m talking about: can you also never shut off masking except when alone and in fact can’t even relate to the concept of being able to “not mask” around others? or maybe around 99.99999% of the human race apart from a few people you know well and have known for years?

I’ve found (thru being homeless and couchsurfing starting well into adulthood haha do not recommend) that I can’t live with most people, even introverts, because their activity pattern is not like my parents that I grew up with, and so my brain fixates on what they’re doing and then I hear every. human. sound. in the house. at full attentional processing. every waking moment of my life. forever.

this decimates my ability to work because I touch computers for a living and I can only touch them correctly in 1 of 2 ways, either collab with others using tools like kanban and a ticket system, or solo hyperfocus for days on end, which has 0% chance of happening without the above going on…

but I got off topic. the question I am curious about is: if you relate to the subject line of the post, do you think the mental energy drain comes from being unable to shut off your awareness of (potentially) being perceived by others in the house; by your having to keep your mask on standby, warmed up and ready to go at all times when others are in the house; or, both? and do you have other thoughts on this particular topic which I suspect is related to a subtle but extremely impactful neurotrait some few tortured souls among us have???

  • 🦄🦄🦄@feddit.org
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    1 day ago

    I know what you are talking about. For me the dread of being pervceived has lessened significantly since realizing I am trans and living closer to my true self.

  • Melmi@lemmy.blahaj.zone
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    1 day ago

    I feel like the stress of being perceived is exactly what drives me to need to be masking all the time, but when I am able to start my hyperfocus I stop noticing the perception as much. I think it’s moreso the actual masking that drains me. But now that I think about it, I remember living with my family and how I would get stressed when other people were awake because they might come to my room and try to talk to me so I ended up doing most of my work at night so I wasn’t keeping my mask on standby to use your words. I ended up being pretty much nocturnal. I don’t think my awareness of the sounds in the house were quite as acute as yours but it was definitely a Thing for me to be bothered by noises in the house when trying to focus, especially when near burnout. And honestly I feel drained just by being in public, even without interacting with anyone. It’s probably a mix of both.

    I can relate to a lot of what you’ve written here though. I mask all the time, I don’t really know how to stop, but it just leaves me completely wrecked after just a few hours of doing it.

    I’m working on finding ways to maybe not unmask, but find more sustainable lower energy masks with safe people. Part of that I guess is finding more safe people. I can pretty much unmask with my partner, but that’s taken a long time to get there. I’d like to be able to spend time with more than exactly one person without burning all my energy on my dumb mask.

  • Possibly linux@lemmy.zip
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    1 day ago

    My primary form of masking is just not talking or drawing attention which doesn’t work for small social environments like roommates or workmates. I don’t understand how others are able to mask all the time as masking for me is literally me putting on a performance with my voice and facial expressions. Any time I’m tired or focused on something like eating I can’t mask. I wish I could just mask all the time with little effort. I don’t experience normal speech so to even have a normal back and forth conversation is hard since I also have to talk slow and in a normal tone.

    One tip though, look for roommates and friends who are also neurodivergent.

  • FoxyFerengi@lemm.ee
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    1 day ago

    Yeah. It sucks because many of us are inherently noticeable simply because we are different. I find myself trying to obscure my activity patterns often, which is particularly stressful given the neighbors I have who comment on my lack of activity or increase in activity. Good strong fences aren’t enough to keep these people out of my business lol

    I think being aware of the masking might make it easier to communicate with a potential roommate or live-in partner, but I still end up with a very strict “this is my decompressing room, please give me peace when I’m in here” policy and one of those Bluetooth lamps that can be turned on/off/color changed by the other parties so I’m not startled or worse.

  • Autonomous@lemmy.ml
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    2 days ago

    I can relate to this, infact in addition to these experiences I have chronic muscle pain from tension which primarily comes from being in contact with others.

    Being isolated and in control of my environment has been pretty much the only way to minimize it.

    As for which of the causes you described are behind the energy drain; for me being perceived automatically turns on what feels like a background awareness that cannot be turned off until no one is there.

    I consider masking to be part of this awareness; a self-defense mechanism that we learn early in our development to protect ourselves from harm by calculating how we react in order to minimize potential harm. In those situations it is impossible to feel entirely safe because we cannot control our environment and if we won’t react carefully we might end up with even more interaction we desperately don’t want.

    Perhaps it is similar in nature to how something that lives in the wild has to maintain a constant awareness to avoid being caught off guard and potentially killed. An activation of fight-or-flight/primitive brain centers in the brain.

    That is one source of energy drain in itself

    There is also the energy drain from the much higher amount of sensory input we are being fed from our brains having many more synapses than those without autism. We can’t simply filter out or ignore everything we are receiving, there’s simply too much of it. It has to be stopped at the source before it can become sensory input. Isolation is the easiest way to accomplish this.

  • reedbend@discuss.tchncs.deOP
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    2 days ago

    masking isn’t something that I can “stop” doing, it generalized and became permanent at age 12.

    I have been quite fairly described by more than one shrink as having blunted affect, which describes my level of displayed emotion, not how strongly I feel it.

    so, I can only “unmask” to some degree around … well, he’s dead. so nobody.

    • MelodiousFunk@slrpnk.net
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      5 hours ago

      masking isn’t something that I can “stop” doing, it generalized and became permanent at age 12.

      I have been quite fairly described by more than one shrink as having blunted affect, which describes my level of displayed emotion, not how strongly I feel it.

      I was honestly having trouble following your post, was starting to get it more and more in the comments, but this stopped me dead in my tracks.

      I don’t know when I started masking but it was well before I was aware I was doing it. Very early conditioning, etc. With hindsight I can guess it happened sometime between 7-10. And as I came to realize much later in life, the person known as MelodiousFunk grew around the mask. Like a tree growing around a chain link fence. There is no removing it, just working around it. Or breaking it. And when the mask fails, so does my sense of self. I’m still recovering from the last failure. Pieces of the mask are still in place, but no longer as connected nor as strong. As maladaptive as the mask is, it’s still critical structure. I’m still working on shoring things up. And it’s taking all of my energy.

      blunted affect

      I’ve never had a professional say this to my face (have never even heard the term before) but this feels like yet another puzzle piece clicking into place. I can talk about upsetting things and remain stone-faced. I’ll get news, good or bad, and have no automatic external reaction. Just conditioned social responses based on context, to meet expectations. It’s like everything inward is turned up to 11, but everything outward is running through a massive compressor. My boss gets me a promotion and a raise: “Man, what does it take to get you to smile?” My nephew after watching me give a eulogy at my dad’s funeral: “How did you do that without crying?”

      “Even-keel” never felt right, because I never felt even. “Poker face” isn’t right either, because I’m not controlling it. “Blunted affect” fits.

      Thank you.

    • Possibly linux@lemmy.zip
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      1 day ago

      Stupid question: Why do you want to unmask? I’m not questioning you but as someone who is generally bad a masking I’m curious to hear a different perspective.

        • Possibly linux@lemmy.zip
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          1 day ago

          So is it sort of like shooting your self the foot long term? I’ve met Autistic people who are high masking and it seem like they can do it all.

          • howrar@lemmy.ca
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            21 hours ago

            So is it sort of like shooting your self the foot long term?

            I’m not sure what you’re referring to here. Masking or not masking? I would say that masking all the time would qualify as shooting yourself in the foot long term. It’s a lot of wasted energy that could be spent doing something else. When you get sufficient time to turn off and relax, it really does feel like autism is a superpower.